Read all about the upcoming family retreat here: Invitation 2014 Registration deadline is JULY 31, 2014!!!!!!
*Newsletters: January 2015: 1.2015 June 2014: 6.2014 January 2014: 1.2014 May 2012: NL 5.2012 December 2012: 12.2012 May 2011: NL 5.20110001 January 2012: NL 1.20100002 October 2011: NL 10.110001 January 2010: NL 1.20100002 September 2009: NL 9.20100001 September 2009: NL 9.20090001 August 2008: 08.080001 December 2008: 12.20080001 […]
Read more about Clyde’s Run 2011 Click here to read AJC Article Clyde’s Run was a great success! Held on Saturday, July 16, 2011, the event continues to grow and attract serious runners from around the state. All the details can be found at: […]
Did you know that May is Prader-Willi Awareness Month? And this year, we were fortunate enough to have Governor Sonny Purdue sign a Proclamation for Georgia. The proclamation was signed on May 6, 2008 with several Georgia PWS families in attendance. A very special thank you goes to Kim Bianco, mom of Kate. Her brother-in-law, Rep. Rich Golick, worked with the Governor’s office to get this Proclamation signed.
This is a great step in raising awareness in the State of Georgia.
What if opening the refrigerator was life threatening? For those diagnosed with Prader Willi syndrome, it can be.Prader Willi syndrome is a lifelong genetic condition of slow metabolic rates, learning disabilities, speech impairment, diminished muscle tone and failure to grow. Caused by the deletion of […]