Prader-Willi Syndrome (PWS) is a birth defect first identified in 1956 by Swiss doctors A. Prader, H. Willi and A. Labhart. Although PWS is generally associated with an abnormality of chromosome 15, there are no known causes for the genetic defect that results in this lifelong condition. It is generally considered not to be an inherited condition; is estimated to occur randomly in about 1 in 12,000 to15,000 people; and it is found in people of both sexes and all races. It is one of the 10 most common conditions seen in genetics clinics and is the most common genetic cause of obesity that has been identified.

PWSAGA will provide emotional support to families and caregivers, and nurture a sense of hope, strength and connection as we strive together to improve the quality of life of individuals with Prader-Willi syndrome.

Our hope is that this website can be a resource for anyone who has a loved one with PWS or just wants to know how to better support the family of the person with PWS.

Want to become a member of PWSGA? Follow this link.

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