Read all about the upcoming family retreat here: Invitation 2014 Registration deadline is JULY 31, 2014!!!!!!
"Our hope is that we can be a resource for anyone who has a loved one with PWS, supports a person with PWS, or just wants to know how to better support a person with PWS."
*Newsletters: January 2015: 1.2015 June 2014: 6.2014 January 2014: 1.2014 May 2012: NL 5.2012 December 2012: 12.2012 May 2011: NL 5.20110001 January 2012: NL 1.20100002 October 2011: NL 10.110001 January 2010: NL 1.20100002 September 2009: NL 9.20100001 September 2009: NL 9.20090001 August 2008: 08.080001 December 2008: 12.20080001 […]
Read more about Clyde’s Run 2011 Click here to read AJC Article Clyde’s Run was a great success! Held on Saturday, July 16, 2011, the event continues to grow and attract serious runners from around the state. All the details can be found at: […]
This video was created by Jeffrey Porter from the Colorado Chapter. It is quite touching and educational.
Did you know that May is Prader-Willi Awareness Month? And this year, we were fortunate enough to have Governor Sonny Purdue sign a Proclamation for Georgia. The proclamation was signed on May 6, 2008 with several Georgia PWS families in attendance. A very special thank […]
What if opening the refrigerator was life threatening? For those diagnosed with Prader Willi syndrome, it can be.Prader Willi syndrome is a lifelong genetic condition of slow metabolic rates, learning disabilities, speech impairment, diminished muscle tone and failure to grow. Caused by the deletion of […]